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The Caregivers' Roadmap

We are working to create a Caregivers’ RoadMap to help others get the information that we didn’t have access to throughout our journey. We are in the process of mapping out a collection of resources based on our journey and conversations we’ve had with others. It will be an ever-changing list that we will update as we find and vet new resources, so please visit this page often.

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In the meantime, please explore these informative resources:

If you have additional resources that could help another caregiver in their journey, please do not hesitate to share them with us! You can email us at or use the Contact Us form below.

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